2021 Prader-Willi Syndrome Association (PWSA) | USA Virtual National Convention

2021 Prader-Willi Syndrome Association (PWSA) | USA Virtual National Convention is organized by Prader-Willi Syndrome Association (PWSA) and will be held from Jun 22 - 26, 2021.

About the Convention:
Prader-Willi Syndrome Association | USA (PWSA | USA) is the largest education, support, research, and advocacy organization for people and families living with PWS in the United States. This convention provides a unique opportunity to access a cross-section of families, providers, scientists, and medical professionals who care for people born with this complex syndrome.

Since its debut in Minnesota in 1979, PWSA | USA’s National Convention has been the most highly anticipated event in the Prader-Willi syndrome community. Now, PWSA | USA is thrilled to bring you its first-ever virtual convention! Over the course of four days, attendees will share ideas and experiences while learning from leaders in the field of PWS. The virtual format makes it possible for more families than ever to attend the event’s many counseling sessions and support groups, meet with top specialists and authorities on PWS, and connect with others who are learning to thrive in the face of a rare disease.

Professional Providers Conference: June 22nd:
Educational, Social Services, Vocational and Residential professional providers come together to discuss identified and supported best practice and standard of care approaches, as well as to provide a critical in-person, solution-orientated exchange of ideas for specific concerns that can be addressed by experts in the field.

Medical & Scientific Conference: June 23rd & 24th:
During this two-day event, Scientists, Researchers, and Medical professionals from different disciplines share ideas and report on progress, helping to meet the ever-present goal to support research that will identify effective treatment, and improve the quality of life for individuals diagnosed with PWS. 

General Conference: June 25th & 26th:
This two-day event attracts parents, grandparents, caregivers, and professionals. The attendees are skillfully guided through a choice of multiple learning tracks covering an array of topics that can be tailored to their individual preferences. It is a time to build relationships with other families, attend counseling sessions and support groups, meet with top specialists and authorities on PWS, and just have fun. Experts in the field provide attendees with up-to-date information and resources for addressing the very complex needs of supporting and caring for an individual diagnosed with PWS.