OVERVIEW

2026 Dravet Syndrome Foundation (DSF) Biennial Family & Professional Conference is organized by Dravet Syndrome Foundation (DSF) and will be held from Jun 25 - 27, 2026 at Renaissance Orlando at SeaWorld®, Orlando, Florida, United States of America.

Description:
Biennial conference brings together families affected by Dravet syndrome, healthcare providers, researchers, and industry partners to foster collaboration, education, and advocacy. The goal is to accelerate research, improve care, and strengthen support for those impacted by the condition. The conference provides a platform to raise awareness, share the latest scientific and clinical advancements, promote equitable access to resources and treatments, and empower the patient community through connection and knowledge-sharing. Over the course of three transformative days, you’ll have the opportunity to connect with fellow families, engage with researchers and clinicians, and gain hope from the latest breakthroughs in care. With a mix of scientific sessions and social events, the conference offers something valuable for everyone!

You can look forward to:

Educational sessions covering all facets of Dravet syndrome, including treatment, research, clinical trials, and day-to-day care
A patient activity room designed with comfort and fun in mind
Sibling camp to keep brothers and sisters engaged and supported
Evening socials and dinners to foster new friendships and celebrate our journey.