Dravet Syndrome Foundation (DSF)

DSF is a nonprofit organization that acts as a convener of the Dravet syndrome community. Since their founding in 2009, they have engaged and educated all of their community stakeholders - patient families, clinicians, researchers, industry partners, and others - to envision and fight for better treatments, and one day a cure for Dravet syndrome. They believe that efforts to improve the quality of life for those affected by Dravet syndrome must include the patient voice and experience to help guide outcomes. DSF is proud to be the largest non-governmental funder of Dravet syndrome research worldwide.

Mission:
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.