Samantha Parker MBA

Samantha Parker is head of Lysogene’s patient affairs and policy. Ms. Parker has contributed to rare disease (RD) research and public health since 2000. She has focused on expanding the RD community of healthcare professionals, patients, industry, and regulators; building disease registries and natural history studies; developing consensus care guidelines and strategies to improve quality of diagnosis and patient care. Ms. Parker has contributed for several years to the area of independent professional education in rare diseases. She is a member of the European Committee of Experts on Rare Diseases (EGRD) and the International Rare Diseases Research Consortium (IRDiRC).