Sally Okun BSN, RN, MMHS

Sally Okun is the Vice President for Advocacy, Policy & Patient Safety at PatientsLikeMe, an online patient-powered research network. She joined the company in 2008 as manager of Health Data Integrity, overseeing medical oncology, patient reported health data, and patient voice vocabulary. Previously, she practiced patient-centered palliative and end-of-life care for over three decades in community and home-based settings engaging with patients and families living with the challenges of illness, caregiving and complicated aging. She has a RN from the Hospital of St. Raphael School of Nursing and Southern Connecticut State University, a MMHS from Brandeis University,

she was a Fellow at the National Library of Medicine Program in Biomedical Informatics. In addition, she participates in numerous collaborations as part of the Institute of Medicine’s Roundtable on Value and Science Driven Healthcare, she is a member of the Office of the National Coordinator for Health Information Technology Standards Committee Consumer Technology Workgroup, and she in on the Program Advisory Board for the Schwartz Center for Compassionate Care in Boston. Okun served as a member of the Advisory Panel on Patient Engagement from April 2013 - April 2016.