Nadia Bodkin PharmD, MS

Nadia is a seasoned rare disease patient advocate, born with three genetic rare conditions. Nadia went straight into professional advocacy work post graduation through a foundation she founded as a pharmacy student, EDSers United. Since entering the rare disease advocacy space through the Ehlers-Danlos Syndrome community, Nadia has held numerous leadership positions with various rare disease advocacy focused organizations developing a variety of community-focused campaigns and initiatives, all of which has always had one main goal in common: supporting the rare disease community's best interests. Working as a consultant conducting landscape analysis, nonprofit business growth and development strategies, digital health community development and engagement, drug development and so much more she decided to found the Rare Advocacy Movement to streamline communications and collaborative network opportunities.

Today, Nadia is currently the Chief Executive Officer for Blaze Therapeutics, one of the founding members of New Love Ventures and an active founding member and collaborative facilitator within the Rare Advocacy Movement.

Nadia functions on the premise of making the most of the time that she has on Earth; and she is doing just that by dedicating her efforts towards improving the lives of those affected by rare conditions, disabled Veterans, and other like-minded individuals through novel human-focused initiatives and innovative multi-stakeholder collaborations.