Marleen M. Kaatee

Marleen Kaatee is a Communication Consultant by trade, tri-lingual, and has studied/worked/lived in various countries, including France, USA, UK and the Netherlands. She is a EUPATI Fellow Patient Expert. Ms Kaatee is the Founder & President of PSC Patients Europe, a ‘new style’ disease-specific patient foundation, often complementary to the already existing national (organ-based) patient associations. The foundation’s mission is to Provide Support to the European Primary Sclerosing Cholangitis Community. PSC is a rare liver disease, currently without a cure and a treatment.
Beside PSC-related activities, Ms Kaatee is also active regarding disease-transcending projects. Her special interests include rare diseases, pediatrics and HTA, as well as transplant-related topics, patient empowerment and getting the patient involved in all stages of Medicines R&D. Currently Ms Kaatee is also vice-chair of the Children’s Medicines Working Party at the European Forum of Good Clinical Practice (EFGCP) and a member of their Patient Roadmap to Treatment WP. She’s also involved as an Asterix Patient Think Tank. In the Netherlands she co-moderates Facebook groups for Dutch-speaking PSC and AIH patients and care givers as well as a group for parents of children with PSC & AIH.