Lucy Dixon MA

Lucy began volunteering with PCD Support UK in 2014 and became Chair in June 2020. Diagnosed with PCD (situs inversus) at 4 years old, Lucy’s first experience of specialist care for PCD was as a student at the University of Cambridge. At 20, she had a major lung operation and, having not met anyone else with the condition before, contacted PCD Support UK. She strongly believes in the importance of bringing the PCD patient community together to help solve the isolation felt by having a rare disease like PCD.

Lucy gives public talks to students, doctors, and other organizations about PCD, she represents PCD Support UK on a number of research boards (including the BEAT-PCD Advisory Board) and alongside the rest of the committee, she helps people and families affected by PCD to access support.

Outside of volunteering with PCD Support UK, Lucy’s professional career has focussed on education and health inequality. In 2020, she became a Black Heart Foundation Scholar and a recipient of the Snowdon Trust Master’s Scholarship, which supported her to study for a Master in Social Research at the University of York. She now works full-time as a health researcher in the NHS. In her spare time, Lucy is passionate about binge-watching Gilmore Girls, listening to live music, and going home to West Wales.