Lauren Roberts MSc

Lauren Roberts currently acting as Joint Interim Chief Executive (shared with Nick Meade, Director of Policy) to provide interim leadership and management of the charity. Responsible for delivery of organizational strategy, governance, finances and income generation.

As the Director of Engagement and Support Lauren role is to develop and deliver our organizational membership programme, and the support we provide to families affected by undiagnosed genetic conditions through our SWAN UK (syndromes without a name) network. Lauren priority is to ensure that everyone in the UK’s genetic, rare and undiagnosed community can play an active role in our research, policy, and public affairs work. Lauren leads the communications across our organization, including delivery of our annual awareness campaigns, Rare Disease Day and Undiagnosed Children’s Day. Lauren has a Masters in Anthropology and Development Studies from the London School of Economics (LSE) and joined Genetic Alliance UK in 2011, having previously worked for other charities such as Kids and Centre 404.