Jennifer Farmer MS, CGC

Jennifer Farmer is the Executive Director of the Friedreich’s Ataxia Research Alliance, having joined the organization in 2006 and been ED since 2008. Jennifer has a Master’s degree in Genetic Counseling and prior to joining FARA she worked at the University of Pennsylvania and Children’s Hospital of Philadelphia. As a genetic counselor at the University of Pennsylvania Jennifer helped to establish the Division of Medical Genetics, focusing on adult genetics, and later became the Division Administrator.

Jennifer’s developed a special interest in neurogenetic conditions and then went on to establish and coordinate clinical and research programs for individuals and families diagnosed with Friedreich Ataxia (FA) and related neurodegenerative diseases. In her current role at FARA as Executive Director, she helps to carry out the strategic mission of the organization through administering FARA’s research grant, scientific conference, patient registry, and education and awareness programs.