Speaker Profile
Christine Lavery

Christine Lavery MBE

Genetics
Buckinghamshire, England, United Kingdom

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Christine Lavery MBE, was appointed Chief Executive of the Society for Mucopolysaccharide and Related Diseases (MPS) in 1993, now employing 22 members of staff, managing a substantial research budget and a unique UK-wide advocacy service providing needs led support to nearly 1300 sufferers, their families and professionals in areas of home adaptations, special educational needs, access to new therapies, respite care, palliative care and pre- and post-bereavement support. Christine has served on the Department of Health Advisory Board on Genetic Testing and is currently a patient representative on the NHS England LSD Specialised Commissioning Advisory Group.
EVENTS & ACTIVITIES (Speaking, Spoken, and Authored)