Speaker Profile
Carole Scrafton

Carole Scrafton MBS

Healthcare Management
Sunderland, England, United Kingdom

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Carole Scrafton is the CEO & Co-Founder of FibroFlutters Patient Advocacy Organization for chronic, rare illnesses. The aim of FibroFlutters is to advocate for a multidisciplinary approach to all aspects of a patient’s medical healthcare that includes all stakeholders. Carole’s work also involves promoting patient engagement best practices and the need for patients to be included within research from the early development preclinical phase. She has been involved as a patient and with FibroFlutters on two initiatives with Patients Focused Medicines Development (PFMD). Carole is a patient expert with experience with MSK-related illnesses including chronic pain, Ehlers-Danlos syndrome, and fibromyalgia.

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