Siegel Rare Neuroimmune Association (SRNA)

Description:
The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international organization dedicated to the support of children, adolescents, and adults with a spectrum of rare neuroimmune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM).

Founded in 1994 by family members and individuals with these diagnoses, SRNA (formerly the Transverse Myelitis association - read more about the change here) was incorporated on November 25, 1996 in the state of Washington and we became a 501(c)(3) organization on December 9, 1996.

Mission:
• To support and advocate for individuals and their families diagnosed with rare neuro-immunologic disorders of the central nervous system.
• To promote awareness and to empower patients, families, clinicians and scientists through education programs and publications
• To advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research