National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD) is a federation of individuals and patient organizations providing advocacy, research support, educational services, and patient assistance programs on behalf of the rare disease community.

Mission:
Improving the health and well-being of people with rare diseases by driving advances in care, research, and policy.

vision:
Across NORD, They adhere to a shared vision that guides our efforts to help improve the health and wellbeing of people with rare diseases.