Organizer Profile
Melorheostosis Association

Melorheostosis Association

New York City, New York, United States of America

The Melorheostosis Association is a 501(c)(3) not-for-profit organization dedicated to finding the cause, treatments, and cure for melorheostosis. focus is on promoting greater awareness and understanding of this progressive disease and its manifestations through education, research, communication and advocacy efforts on behalf of those affected by it as well as those dedicated to alleviating it.

Melorheostosis.org is:
• the largest database of melorheostosis patients in the world
• a community of melorheostosis patients and their families joined to share information, offer support, and seek answers together
• a resource for treating physicians, researchers and other professionals
CONFERENCES AND COURSES