International Society for Neonatal Screening (ISNS)

This society is aiming to advance screening for neonatal and infant sicknesses and disorders, worldwide. ISNS has around 470 members in more than 70 different countries. Most members have a professional (para)medical background but a few are involved in parents or patients advocacy groups.

Vision:
ISNS is recognized worldwide for its contributions to the detection of neonatal conditions and the prevention of their adverse outcomes through excellence in neonatal screening.

Mission:
To enhance the quality of neonatal screening and medical services through dissemination of information, guidelines and best practices that benefit all family members and their babies by helping to ensure protection of babies from life-quality threatening conditions, such as phenylketonuria, congenital hypothyroidism, severe combined immunodeficiency, cystic fibrosis, hemoglobinopathies and many others.