Organizer Profile
International Rare Diseases Research Consortium (IRDiRC)

International Rare Diseases Research Consortium (IRDiRC)

Ile de France, Paris, France

IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare diseases by the year 2020. Considerable progress on these goals has been made: the goal to deliver 200 new therapies was achieved in early 2017 – three years earlier than expected – and the goal for diagnostics is within reach.

Vision:
Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention.

CONFERENCES AND COURSES