Organizer Profile
Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)

Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST)

Colmar, Pennsylvania, United States of America

About:
If you or a family member has ichthyosis or a related skin type and is in need of support, education, connection, and compassion, you have come to the right place. FIRST is the world's leading patient advocacy organization dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types. FIRST educates, inspires and connects all affected individuals, their families, medical professionals and the general public with regard to ichthyosis and the related skin types.

Vision:
To reach every affected person, their family, and all related medical professionals through Their comprehensive array of resources, including a support network, publications, and a website housing a vast library of resources.

Goal:
To provide trustworthy and compassionate support, reliable information, and useful resources throughout a person's entire lifetime.

Mission:
To improve lives and seek cures for those affected by ichthyosis and related skin types.

Core Values:
Compassion - They are a caring organization recognizing the unique challenges faced by Their community and will provide support with kindness and empathy.

Hope - While celebrating today's strengths and successes, They strive to convey to all individuals affected by ichthyosis that the future will be filled with friendship, support and a cure for ichthyosis.

Integrity - They will conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say.

Responsiveness - They provide accurate and timely information about ichthyosis to meet the medical, social and educational needs of Their community.
CONFERENCES AND COURSES