EURORDIS-Rare Diseases Europe

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 932 rare disease patient organisations in 73 countries.

They are the voice of 30 million people affected by rare diseases throughout Europe.

Mission:
EURORDIS' mission is to work across borders and diseases to improve the lives of all people living with rare diseases

Vision:
EURORDIS’ vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no one behind.