Organizer Profile
European Neurofibromatosis (NF) Association

European Neurofibromatosis (NF) Association

Paris, Ile-de-France, France

Description:
The European Neurofibromatosis Association, an umbrella organization for national NF patients groups in Europe.

Goals European NF Association:
• We need to collect, evaluate, select, update, translate clear and useful information.
• We need to urge professionals to corporate, We need them to get access to the most appropriate help and treatments, and they need us to find out what NF is all about.
• We need to urge governments to investigate in scientific research. As a European association we are stronger and more able to convince who ever we need to, to increase quality of life for all families affected, help them to become self supporting and so reduce costs for social support.
• We need to convince teachers, educators, employers, learning disabilities coming out of NF are NOT a reason to exclude people affected from graduation and from appropriated jobs. So we need to spread clear information about limitations AND skills of people affected by NF.

CONFERENCES AND COURSES