European Haemophilia Consortium (EHC)

The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 47 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe.

The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.

The EHC actively supports its National Member Organisations (NMOs) at national and European levels, and also helps NMOs to engage with each other, with the objectives of:
• Improving the quality of life of people living with rare bleeding disorders
• Improving diagnostic and treatment facilities
• Ensuring adequate supply of – and access to – safe factor concentrates
• Promoting patients’ rights and raising ethical issues
• Following and influencing developments in European health policy
• Understanding the status of haemophilia care in member countries through regular surveys
• Stimulating research in all fields related to haemophilia and related rare bleeding disorders.

Mission:
The European Haemophilia Consortium (EHC) is a non-profit, non-government organisation that works to improve the quality of life for people with congenital bleeding disorders such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders in Europe.