Organizer Profile
Debra

Debra

Berkshire, England, United Kingdom

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group.

Our vision:
We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.

CONFERENCES AND COURSES