American Syringomyelia & Chiari Alliance Project, Inc. (ASAP)

The American Syringomyelia & Chiari Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3) donor- supported organization founded in 1988 by Barbara and Don White. ASAP began as a grass roots organization in the White’s spare bedroom due to the frustration they encountered when Barbara was diagnosed with Chiari malformation and syringomyelia. Since then, ASAP has grown tremendously but our fundamental goals of research, education and support remain the same.

ASAP works to educate and inform the public and health professionals on Chiari (CM), syringomyelia (SM) and related disorders. Our goals include increasing awareness, early identification of patients and a deeper understanding on the symptoms, causes, and management of the disorders. One of ASAP’s leading education and support program is the Chiari & Syringomyelia Conference held annually. The four day event brings together leading physicians and researchers, families and caregivers, patients and allied health care professionals for a unique opportunity to learn, share and exchange ideas. In addition, ASAP publishes written educational materials and provides webcasts on various topics of importance to the SM/CM community.

Mission:
To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders until we find the cure.