Alstrom Syndrome International (ASI)

About:
• Alstrom Syndrome International is a 501 (c) (3) registered charity.
• Advocates for patients in forty seven countries representing every ethnicity.
• Provides families with a Family Packet of detailed information and resources.
• Advances communication with existing and developing national support groups.
• Preserves balance in its three programs: Family Support, Education, and Research.
• Develops, maintains, and manages the largest Alstrom Syndrome clinical database in existence.

Mission:
To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome.