Organizer Profile
Acoustic Neuroma Association (ANA)

Acoustic Neuroma Association (ANA)

Cumming, Georgia, United States of America

ABOUT
Acoustic Neuroma Association® was founded in Carlisle, PA in 1981 by an acoustic neuroma patient, Virginia Fickel Ehr. She found no patient information or patient support available when she had surgery for the removal of an acoustic neuroma in 1977. She resolved that future acoustic neuroma patients should have easy-to-read medical material about their condition, and support and comfort from each other. With the help of her physician, she contacted eight other patients and formed the organization.

The association is incorporated and is a 501(c)(3) non-profit organization. The patient-focused, member organization now serves nearly 5,000 members including acoustic neuroma patients, family members, friends and healthcare professionals providing information regarding all treatment types. It is governed by an all-patient (or family member) Board of Directors and is operated by a small staff in metropolitan Atlanta, GA.

ANA is patient-founded, patient-focused and patient-funded.

MISSION
The Acoustic Neuroma Association, the premier resource to the Acoustic Neuroma community, informs, educates and supports those affected by Acoustic Neuroma brain tumors.

VISION
To continually improve the lives of Acoustic Neuroma patients and their families through communication, support, innovation, and partnerships with the medical community.

VALUES
• Respect: to honor the needs and privacy of acoustic neuroma patients
• Professionalism: to maintain high ethical standards at all times
• Objectivity: to remain free of bias in everything we do
• Patient Centricity: to place the patient and their community at the forefront of all ANA efforts