OVERVIEW

Addressing the Unpredictable Diagnostic Odyssey of Rare Disease is organized by OptumHealth Education (OHE).

Activity opens: 01/02/2023
Activity expires: 01/03/2025

Activity description:
This activity consists of a recorded presentation from the "31st Annual National Clinical Conference" held in Bloomington, Minn., Oct. 17-19, 2022.

Rare diseases — often complex, chronic life-threatening conditions affecting roughly 33 million people in the U.S. — impact quality of life, carry a high financial burden, and have few, if any, treatment choices. Adults and children with undiagnosed genetic diseases often face an unpredictable, long journey, referred to as a diagnostic odyssey, that lasts eight years on average and includes unnecessary tests and procedures, misdiagnoses, and delayed treatment while their conditions worsen. This presentation addresses the needs for improved access to care, new advances in rare-disease diagnosis, and treatments emerging with the rise of personalized precision medicine. New possibilities for collaboration among medicine, research and drug-development organizations are also discussed.

Learning Objectives:
At the end of this educational activity, participants should be able to:

  • Provide an overview of the conditions that qualify as rare diseases and their impact on quality of life, health care costs, and outcomes as related to diagnosis and treatment availability.
  • Discuss the current and emerging contributions that precision medicine and specific testing approaches can provide in diagnosing and treating rare diseases.
  • Describe how rare-disease outcomes can be improved through strategies such as collaborative approaches that coordinate health care, research, and drug-development organizations.
Credits

Accreditation:

Method for calculating CE credit
CE credit was calculated by the complexity of content.

Accreditation Statement
In support of improving patient care, Optum Health Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the health care team.

Credit designation statements
IPCE Credit LogoThis activity was planned by and for the health care team, and learners will receive 1.00 Interprofessional Continuing Education (IPCE) credits for learning and change.

Nurses
The participant will be awarded up to 1.00 contact hour(s) of credit for attendance and completion of supplemental materials.

Nurse practitioners
The American Academy of Nurse Practitioners Certification Program (AANPCP) accepts credit from organizations accredited by the ACCME and ANCC.

Pharmacists/Pharmacy technicians
This activity is approved for 1.00 contact hour(s) ([0.100] CEU) in states that recognize ACPE.
Attending the full program will earn 1.00 contact hour(s).
Unique Activity Number(s): JA0007123-0000-23-030-H01-P/T

Physicians
Optum Health Education designates this enduring activity for a maximum of 1.00 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

PAs
The American Academy of Physician Assistants (AAPA) accepts credit from organizations accredited by the ACCME.

Case managers
The Commission for Case Manager Certification has approved this program for a maximum of 1.00 clock hour(s) for Certified Case Managers (CCM).

Dietitians 
Completion of this RD/DTR profession-specific or IPCE activity awards CPEUs (One IPCE credit=One CPEU).

If the activity is dietetics-related but not targeted to RDs or DTRs, CPEUs may be claimed which are commensurate with participation in contact hours (One 60 minute hour=1 CPEU).

RD's and DTRs are to select activity type 102 in their Activity Log. Performance indicator selection is at the learner's discretion.

Psychologists and social workers
Participants must have attended the entire Web-based activity and completed an evaluation to receive a certificate. Partial credit is not available.

Psychologists
Optum Health Education is approved by the American Psychological Association (APA) to offer continuing education for psychologists. Optum Health Education maintains responsibility for this program. 1.00 CE hour.

Social Workers
As a Jointly Accredited Organization, Optum Health Education is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. Optum Health Education maintains responsibility for this course. Social workers completing this course receive 1.00 enduring continuing education credit.

Attendance
A certificate of attendance will be provided to learners upon completion of activity requirements, enabling participants to register with licensing boards or associations that have not been preapproved for credits. To apply for credit types not listed above, participants should use the procedure established by the specific organization with which they wish to obtain credit.

Available Credit
1.00 ACPE - Pharmacists
1.00 ACPE - Pharmacy Technicians
1.00 AMA - Physicians
1.00 ANCC - Nurses
1.00 APA - Psychologists
1.00 Attendance - General Attendance
1.00 CCMC - General - Case Managers
1.00 CDR - Dietitians
1.00 ASWB - Social Workers 

  • 1 IPCE
  • 1 Contact Hours
  • 1 AMA PRA Category 1 Credit™
  • 1 Hours
  • 1 CE Hours
  • 0.1 CEU
  • TARGET AUDIENCE

    PhysicianPharmacistPhysician AssistantSocial WorkerNurseDietitianCase ManagersNurse PractitionersOther Health ProfessionalsPsychologists

    SPECIALITIES

    Healthcare ManagementChronic Diseases

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