Research That Heals: Partnering with Patients to Transform SCD Care

Research That Heals: Partnering with Patients to Transform SCD Care is organized by National Heart, Lung, and Blood Institute (NHLBI) and will be held from Jun 25 - 26, 2026 at Neuroscience Center (NSC) Building, North Bethesda, Maryland, United States of America.

Description:
This 1.5-day hybrid forum will be a crucial platform for engaging directly with the sickle cell community, including individuals with sickle cell disease (SCD) and their families and caregivers, healthcare providers, and community-based organizations. The forum aims to discuss and develop solutions to enhance care and improve the quality of life for children and adults living with SCD. 

Participants will have the opportunity to share their experiences, insights, and suggestions, helping to shape future strategies for SCD research training, education, and partnerships. The forum will also focus on evaluating the progress made in the field and identifying a collaborative approach for continued improvement.