Rare of the Rare Summit

Rare of the Rare Summit is organized by Immune Deficiency Foundation (IDF) and will be held from Aug 28 - 30, 2020 at Bethesda Marriott, Bethesda, Maryland, United States of America.

Description:
Rare of the Rare is an opportunity for those affected by the rarest forms of PI to meet with NIH experts, learn about new research and therapies, and meet others who share similar experiences. Featured sessions will include clinical trial information, family-centered programming, a focus on YOU as the expert, targeted breakouts, and information on the state of treatment and therapy. Your feedback about unmet needs in these communities will help guide future programming from IDF.

The summit is designed for those with phagocytic and complement disorders as well as t-cell and combined deficiencies including:
• Chronic Granulomatous Disease (CGD)
• Complete DiGeorge Anomaly (CDGA)
• Good’s Syndrome (GS)
• Hemophagocytic Lymphohistiocytosis (HLH)
• Hyper IgE Syndrome/JOB Syndrome
• Hyper IgM Syndrome (HIgM)
• Leukocyte Adhesion Deficiencies (LAD) 1 & 2
• Natural Killer (NK) Cell Deficiency
• NEMO Deficiency Syndrome
• Severe Combined Immunodeficiency (SCID)
• WHIM (warts, hypogammaglobulinemia, infections and myelokathexis) Syndrome
• Wiskott-Aldrich Syndrome (WAS)

Additional details will be posted as soon as information is available.