International Scientific, Medical & Family Conference 2020

This Conference has been Postponed.

International Scientific, Medical & Family Conference 2020 is organized by Barth Syndrome Foundation (BSF) and will be held from Jul 20 - 26, 2020 at Hilton Clearwater Beach Resort & Spa, Clearwater Beach, Florida, United States of America.

The Barth Syndrome Foundation's (BSF) biennial conferences bring affected families, research scientists, and clinicians together in one place at one time for a dual track meeting. BSF and our affiliates in Canada, France, Italy, and the United Kingdom firmly believe that while each of these groups can make some progress in their individual efforts, together, we are so much more powerful.

Doctors who might care for a single patient will have the opportunity to see well over 50 at once, gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also to hear from scientific experts about the latest discoveries that shed light on the scientific underpinnings of the disorder.

Scientists will hear presentations on colleagues' recent work, as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory.

Families have a unique opportunity to be seen by the world´s greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history and even their own tissue as well as to learn from experts and from each other so that they can better advocate for their child(ren).

Additional details will be posted as soon as they are available.