Amy Leitman is the Director of Policy & Research at NTM Info & Research, a nonprofit advocacy group for patients with pulmonary nontuberculous mycobacterial disease. The daughter of a patient with NTM lung disease, she has spent the last decade championing the voice of the patient.
In her role, Amy represents the interests and perspectives of patients, healthcare providers, researchers, industry, and other interested stakeholders, submits letters to legislators, regulators, and independent organizations seeking patient input, and speaks at multi-stakeholder meetings. She has presented original patient preference research at an FDA meeting and is a co-author of several papers on NTM lung disease. As NTMir’s representative to the NTM Research Consortium, Amy has collaborated on patient-centered and epidemiologic research.
Prior to joining NTM Info & Research, Amy spent many years working in communications and marketing, including for an NBA team where she oversaw the revision and relaunch of their website as well as the development of gameday collateral materials, and a major community nonprofit organization that mobilized human and financial resources to strengthen local and international community social safety nets.
Amy is a member of the American Thoracic Society, the Infectious Diseases Society of America, the American College of Chest Physicians (CHEST), the American Society for Microbiology, the European Respiratory Society, and the Drug Information Association.