CDG CARE (Community Alliance and Resource Exchange)

CDG CARE (Community Alliance and Resource Exchange) is a nonprofit 501(c)(3) organization founded by parents seeking information and support for a group of disorders known as Congenital Disorders of Glycosylation (CDG).

The mission is to promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for scientific research to advance the diagnosis and treatment of CDG.

Uphold the mission by:
• Providing information and support to individuals diagnosed with CDG, their families, and the professionals who work with them
• Increasing public awareness and understanding of CDG
• Developing a resource of programs and services to help individuals build strengths and meet challenges from early childhood through adulthood
• Encouraging and supporting research into a wide range of issues related to CDG

Vision… Where CARE Grows…
• CARE Grows… with every new patient who is properly diagnosed
• CARE Grows… as donor commitment broadens to support new educational and research opportunities
• CARE Grows… with every medical and therapeutic advancement that leads to improved care
• CARE Grows… as global collaboration and partnerships raise awareness and strengthens the future for their Community