Alport syndrome Foundation (ASF)

The Alport syndrome Foundation is a non-profit organization founded in 2007 by a group of families affected by the disease and guided by a Medical Advisory Committee of renowned Nephrologists. The Foundation was built on the past efforts of the late Dr. Curtis Atkin (who himself had Alport syndrome) of the University of Utah and the Hereditary Nephritis Foundation. ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport syndrome community.

The ASF MISSION is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and research.

The ASF VISION is to conquer Alport syndrome.